Well, I got the BIG phone call today that no one wants to get. Grant will need shunt surgery. Yesterday was his spina bifida clinic appointment and he had a kidney/bladder ultrasound and saw uro and neuro. His neuro has just been measuring his head and feeling his fontanel every 2 to 4 weeks and occasionally getting a CT of his head. Yesterday was a day he wanted a CT. So we go the scan after his clinic appointment and went home, expecting to get a phone call today with the results. But somehow messages got crossed and I simply got a call from the nurse saying Grant had surgery scheduled. That totally felt like a punch in the stomach from out of no where. She apologized for the missed communication, but I was still unprepared to get that phone call. Now my little boy will have to have major surgery again.
At least we had good news in the uro department. His kidneys were growing normally and showed no signs of dilation/reflux. His bladder had only slight thickening of the walls and since he has plenty of wet diapers and can make a good stream of urine (about half the time), and has not had any infections Dr. C said we can wait 6 months before further tests. At that time we will have the VCUG, ultrasound and urodynamics.
Please say a prayer for Grant that his surgery will go smoothly on Monday and this will be the only shunt surgery he ever needs. No revisions or complications!!
