Journey through the beautiful, painful, and unexpected life with a special boy who happens to have spina bifida too.
Friday, June 25, 2010
Do we have to go again?
It was another successful but tiring trip to AR Children's Hospital yesterday for Grant, Grandma and me. We got up at 4 am to leave by 5:15am. Grant was sleeping soundly and kept sleeping in his car seat for most of the trip. He is such a sweet baby and a trooper on these long trips. He first had a kidney and bladder ultrasound and flirted with the ultrasound tech. Then we had to wait for an hour and half to be called back for his spina bifida clinic appointment. The urologist said his kidney's looked perfect and so did his bladder and said that it sounded good that Grant can make a good stream of urine. So no talk of cathing or antibiotics or anything like that. Praise the Lord!! He was so good all day, flirting and smiling with everyone he saw. He also saw the social worker, PT and the rehab doctor. The social worker said he was the cutest little thing she had seen all day and she said she had seen a lot of kiddos that day. We are so thankful that he is doing so well.
Monday, June 21, 2010
Happy Birthday Grant!!
Friday, June 18, 2010
A long day
Yesterday was a long day trip to Arkansas Children's Hospital again. Grant had another recheck of his hydrocephalus. The CT of his head showed no changes in the size of the ventricles and his head measurement hadn't changed in 3 weeks!!! Praise the Lord! We've been praying that the CSF will find it's own natural, normal path out of his brain and he won't ever need a shunt. So far the Lord is answering our prayers. Grant did great on the drive down. We left at 5:10 am, and got home at 5:00pm. It was a long day. But praise God, we received wonderful news though.
Monday, June 14, 2010
The first day
This is the first day of my blogging journey. I want to be able to share my son's story with others who are searching for connections with others who are raising a child with spina bifida. He is just waking up from a nap so this will be a short post but hopefully over the next few days I can get things up and going and do a retrospective story of his story. He will be four months old on June 21. He is my little miracle.
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